Madeline is doing good, she has been mostly good for a couple of days now. Last night she was so cute and wide awake, engaging all the nurses and doctors who attended to her with her big beautiful eyes. As I tried to process all the information from the geneticists Madeline kept looking and smiling at me reassuring me that everything is just fine as if only God and her knew what was really going on.
Madeline has had some difficulty maintaining her glucose levels, they are trying to decide whether or not to give her growth hormone. The problem with the growth hormone is that if she gets it, it is likely her body will cease to make it on its’ own and she will require daily shots for the rest of her life. However, her glucose has been good and stable the last 2 days. Please pray that Madeline’s glucose levels remain good and that the doctors will not find need to give her the growth hormone.
She is starting back on feeds once more, pray that it goes well this time and that she can stay with it. Pray for me as try to make decisions about the upcoming memorial service. Pray for Lisa and the kids for energy amongst everything else. God has been so good to us.
Lisa & Shanker.