What a whirlwind of a weekend. I ended up getting sick anyways, despite having stayed away from home. Thank the Lord it was just a quick bug. The show went well this weekend, a special thanks to all who attended and helped out. We were all tired I’m sure, but we had some fun. Nothing like great wine, great music, and great friends to hang out with.
I haven’t seen Madeline for 2 days, which is how long I have to stay away when I’ve been sick. I’ve really missed her, it was good just to sit with her and look into her big eyes and talk to her and tell her stories about her sisters until she dozed off to sleep.
Madeline was briefly scheduled to have surgery on Monday morning for her diaphragm, but her heart surgeon doesn’t think that will fix anything. The problem still is that she has 3 holes in her heart and blood is not flowing correctly out to her body and lungs as a result. He (the surgeon) thinks that the better fix will be to repair her heart requiring open heart surgery on a bypass machine.
Needless to say, the thought terrifies me. It’s another one of those things where it’s best to wait until she gets bigger, but can she wait that long. They will be having a conference on Monday to discuss her case. Please pray for good discussion and that the doctors and surgeons can come up with the best plan for Madeline that will help her get better and go home.
Most of the time Madeline does fine. She still does have her desat episodes from time to time. Although they are not more frequent, they can be more severe these days. Madeline is growing though, she is getting ready to pass the 4lb mark!! Praise the Lord. Please pray for Madeline as the docs talk about her. Pray that her body continues to get stronger and stronger each day.
Shanker & Lisa.